Compassionate Care ALS is a non-profit organization with a mission to support people diagnosed with ALS, their families and communities as they navigate the complexities, both physical and emotional, associated with the disease. The organization provides resources including equipment, educational workshops, Medicare/Medicaid assistance, guidance and awareness in living with ALS, caregiving, and end-of-life issues.
The Travis Roy Foundation is dedicated to enhancing the life of individuals with spinal cord injuries and their families by providing adaptive equipment and to finding a cure through increased funding of research, resulting in self-reliance and the ability to be as independent as possible.
The Pete Frates Home Health Initiative aims to provide in-home caregiving assistance for individuals living with ALS in Massachusetts who cannot otherwise pay for these services. The initiative is named in honor of Pete Frates, who inspired the world to fight ALS by taking the Ice Bucket Challenge.
ALS is a degenerative and fatal neuromuscular disease that causes individuals to gradually lose control of their voluntary muscles. Also known as Lou Gehrig’s disease, ALS has no known cause or cure. The disease progresses differently in each case, though people often die when they lose the capacity to breathe or swallow, while retaining their ability to see, hear, and comprehend what is happening.